May 16

Vote for Ryan Today! Help this Angel with CP Get an Adaptive Bike

I received this email today from a mother who is trying to get her angel Ryan an adaptive bike. I am sharing it in hopes that you will take a few minutes out of your day to help her little guy get the bike. I know Phoenix loves his!

I know that you have never met my son but I have been following your blog for quite some time. Today I happened to go to your Facebook page for the first time and saw the picture of your little guy on his bike. What an awesome picture. Is that a Freedom Concepts Bike?

(Yes it is – thanks Freedom Concepts and Jackson Baldwin Foundation!)


My son Ryan was born 10.5 weeks early. From the get go he has been such an amazing fighter. Ryan was diagnosed with cerebral palsy a little over a year ago. While he is doing amazingly well, we continue to search for things that will help him grow and further develop his motor skills. It was recently brought to our attention by his developmental specialist that he would benefit from an adaptive bike. Very soon after we found “The Great Bike Giveaway”. This contest will provide an adaptive bike to the top voted 14 entries. So we are asking for your vote. There is no charge, it only takes about 30 seconds and it could make a huge difference for Ryan. Thank you!!! Feel free to share with your friends and family, churches, random strangers on the street and pretty much anyone you think might be interested in voting:) I also wondered if there was anyway that you could post this on your blog. I completely understand if you are not comfortable with that idea but live with the belief that you never know unless you ask. And I would do anything for this little guy.

If you would like to vote, here is how:

Step One: Visit http://bit.ly/greatbikegiveaway
Step Two: Like the Friendship Circle of Michigan Facebook Page
Step Three: click the keys ctrl and f at the same time. A search box will appear on the top of your web browser. Enter “Michelle Woods” and the text will be highlighted.
Step Four: Check the vote box
Step Five: Next to the vote box is a share button. Click this button to share the entry on your Facebook page so your friends can vote too. It’s a great way to multiply your vote

Thanks so much for helping my son win a bike. I’m glad you were able to enjoy your day of reprieve and wish you all the best in your next endeavor especially in regards to fighting for a power chair:)

The contest ends this Friday @4pm so time is of the essence.

Many Thanks

Michelle

May 16

Got ADHD? You Qualify for SSDI! (& My Son With Cerebral Palsy Doesn’t)

Grab your DSM-IV. You, yes YOU qualify for Social Security Disability Benefits and as an added benefit, you may also receive your very own Medical Marijuana card!

Yes, this is a rant. I’m pissed and disgusted as I write today. I lost another caregiver – this time due to the fact that she can make more money collecting SSDI than she can working as a caregiver for my son, who as you all know has Spastic Quadriplegic Cerebral Palsy – yet HE doesn’t qualify. Why? Because I work. And my income counts against him receiving benefits. I know this for a fact. I’ve applied twice on his behalf.

Obviously, my caregiver was able-bodied enough to take care of Phoenix. Her job was to pick him up from his elementary school, bring him home, let him go potty, work with him during lunch to learn how to use eating utensils and then drive him to his afternoon daycare. For the most part, she was doing the job well. So when she told me she had applied for social security disability, I had to ask her what her “disability” was. Brace yourselves: ADHD. Are you effing kidding me? What a lazy, Walmart-shopping, pajama wearing, bon bon popping, social security check collecting loser. She’s 20, by the way.

Over the years, I have met and worked with a lot of people who clearly “suffered” from ADHD. I’m thinking of two people in particular as I write this. Both talented people persons, they could put deals together that earned their employers and in turn, them, big money. Talented multi-taskers, they were often very disorganized people. That’s okay – there were people like me there to assist them, get their lives in order and do the busy work that freed them up to be able to do what they did best. Both of these people earned well over $100K a year. One of these people actually does use marijuana to successfully offset the ADHD. Maybe the social security administration should suggest medical marijuana as an alternative that should be tried rather than simply laying down and paying out benefits. (Not that I would have wanted a stoned caregiver – LOL). I digress. I just have a serious problem with someone being able to actually get government money for ADHD. Give me a break.

What else qualifies? I’m sitting here thinking of what I could find in the DSM-IV that would get me SSDI benefits. Every single one of us could seriously come up with something. I could go to a doctor today and claim I suffered from anxiety – no one would question me with my life, would they? I could also probably say I suffer from insomnia and the doctor could write up a really ominous prognosis. I don’t have either one of these problems – but without the doctor spending a week with me 24/7, how could my claims be disproved?

How is it fair that people who chain smoke and/or drink themselves silly and/or graze at all you can eat buffets, abusing their bodies until they ultimately qualify for SSDI and my son, who was BORN with an extremely limiting physical disability can’t? Total bullshit.

The irony of the situation is that Phoenix may not actually even apply for benefits when he is old enough. Why? Because he will go to college and work for a living and I am quite sure, it will be a very good one where he will earn a lot more than a measly $1,300 a month or whatever it may be that his former caregiver is excited about. It is people like Phoenix who should inspire us all to take a long hard look at our own perceived challenges and keep going.

Maybe his caregiver had that thought but couldn’t hold onto it? I guess I should be grateful that she didn’t stick around long enough to have any lasting negative influence on Phoenix. So on this note, good riddence, Alecia. I would say I’ll see you around…but I don’t shop at Walmart.

May 09

Just Breathe

So a couple of things happened to me this week that might have thrown those of you with Type “A” personalities into a bit of a tailspin. First, I was released from my obligation to sit at a desk from 9 to 5 Monday through Friday which in turn relieved my former boss of his promise to pay me a salary twice a month. Kind of a big deal, yes, but since I just went through this less than six months ago, I didn’t stress out or cry or even bat an eye as I drove straight to the Circle K across the street and bought a 12 pack of Bud Light. Much to my delight, when I returned home to drink a cold one, I discovered that my new (cute 28-year-old) neighbor was off for the day. I now had a partner in crime (read: driver). This day was getting better and better! In search of a pool, we found our oasis at Scottsdale’s Spanish Fly where we soaked up sun amongst a large crowd of trust fund kids, students and otherwise nocturnally employed or jobless people. It always blows my mind when I get a glimpse at the life I haven’t been living as I’ve been slaving away under bad flourescent lighting. What a great day it was indeed – an unexpected vacation day while Phoenix was at school and daycare. Thanks Rosenstein Law Group!

When I awoke bright and early on Tuesday morning, ready to start my very own game of Survivor Arizona, I took a closer look at Monday’s mail stack, noticing in particular an orange postcard letting me know that I had registered mail waiting for me at the Arcadia station. After I dropped PJ off at school, I went straight there, not expecting good tidings. So I guess you could say I was prepared when I opened the letter from the state wherein they notified me that their original decision NOT pay for Phoenix’s Permobil K450 power chair was being upheld. This pissed me off more than losing my job! My appeal letter was the bomb (if I do say so myself). What the hell??? Immediately, I started to calculate my next move and felt the tight suffocating feeling of anxiety beginning to wash over me. I put the letter aside. I then met up with my friend Enjolie for lunch at Arriba where we enjoyed spicy food and juicy conversation.

It is times like these when a person simply needs to stop, count to ten and just breathe. After all, the clock keeps ticking. The earth keeps spinning. The trust fund kids keep spending their money on bottle service and cabana boys on Monday afternoons. Its all good and everything is right in the world.

At least that’s what I’m telling myself.

When I took the job at Rosenstein Law Group, I felt a little rushed about the whole thing. I was really enjoying my unshackled life but an unfortunate requirement of unemployment (benefits) is that you must apply for jobs and keep a record of it. I landed this job on accident. But it was a good one! Great hours, close to home, medical benefits, paid time off, my very own office and diet coke in the company fridge free for the taking. I think I could have hung on for a while, were it not for the fact that the bankruptcy department was simply not bringing in enough clients to justify my (incredibly deserved) salary. However, the guilt was starting to set in. Guilt about taking sick time a couple weeks ago when I was near death. Guilt about Phoenix’s almost weekly appointments with doctors, specialists, therapists, camps, caregivers and caseworkers. Guilt about being the only employee to take an hour lunch, simply because it was pretty much the only hour of the day I ever got to myself. I know a lot of people might think this is a silly thing to say but I was only working at that job for the money.

After I had a chance to step back and breathe (after all, getting laid off or fired is best described as a punch to the gut), I realized that everything happens for a reason and the universe or God or whatever you want to call our Creator is trying to lead me in a different direction. It is time for me to write a book.

As for the state of Arizona, you are toast once I catch my breath. Phoenix will have the Permobil K450 power chair because unfortunately for you, I have a bunch of free time on my hands to fight you for it!

May 04

My Little Clark Kent and His New (Spider-Man) Glasses

I will never forget the day I went to the DMV to take the test to get my driver’s license. I flunked. No, I’m not a bad driver thank you very much. I flunked the vision test. Me wear glasses? I think not! A typical vain teenager, I swore I would only wear my glasses in the car. And that’s exactly what I did until college, when I started wearing contacts because I couldn’t see the chalkboard. To this day, I still refuse to wear them. I actually got PRK surgery (the painful version of Lasik) a year before Phoenix was born and it was one of the best things I’ve ever done for myself. To be honest, the problem is simply that glasses on me are not cute. I’ve got a big nose and glasses only seem to accentuate that fact.

So when Phoenix’s eye specialist told me he needed glasses, I immediately starting playing my own biased tapes in my head. I was horrified. My first question was, “Is he a candidate for Lasik?” My second question was, “When can he start wearing contacts?” Stupid, vain questions. What am I, 16? I found hope in the answers. He can get the surgery in his 20’s and he can wear contacts as soon as he lets me take them in and out of his eyes. After I got those questions out of the way, I gave myself a spoonful of sugar and turned into Mary Poppins. “Phoenix! Guess what? You get new glasses? Cool! Let’s go pick some out.”

He was excited and quickly gravitated toward the blue Spider-Man pair, only when he put them on, he didn’t look like nerdy Peter Parker. He looked like drop-dead gorgeous 1978 Christopher Reeve Clark Kent.

Damn! If glasses made me look that good, I would have been wearing them for the past 20 years!

Of course, we had to get insurance approval and have the glasses specially made but our patience finally paid off yesterday. When I picked Phoenix up from daycare last night, I told him I had a surprise for him and presented him with the long-awaited Spider-Man glasses. He put them on and proudly showed the teachers his new look. And then he turned to me and quietly and sincerely said, “Thanks, Mom.”

You are welcome, Superman.

Apr 26

Using the Internet to Expose Bad Special Education Teachers

From MSN Today: Autistic Boy’s Father: Why Hasn’t Teacher Been Fired Over ‘Bullying’?

I love the internet. The power of video and the viral nature of facebook, twitter and other social media is bringing evil to light. For all of eternity, there have been bad seeds, entrusted with the important task of caring for our special needs children and adults, abusing their power and ‘bullying’ innocent angels who cannot defend themselves or report the bad behavior. God bless this father for doing something about it – wiring his autistic, nonverbal son and recording what was going on in the classroom in an attempt to get to the bottom of what was causing him to act out.

In four short months, my son is starting kindergarten. How horrified am I to learn that this is going on? My naïve and trusting raised-in-a-small-town mind had me thinking that teachers who specialized in special education were all pure-hearted angels from heaven, here to do God’s work. I have personally met so many caring special people who have loved my son as if he was their own. But then I read about these teachers bullying a sweet autistic boy and watch with shock and horror as Alicia from Survivor compares Christina to one of her “Special Ed kids” and insinuates that they all have “zero IQ’s, if there is such a thing.” Yeah, Alicia, there is and YOU are a perfect example of it. I’m actually surprised she didn’t bust out the ‘R’ word.

Here is a special message to the Alicia Rosas and the Kelly Altenburgs in the world. I speak on behalf of all of the parents of special needs children when I say that we will continue to fight, to advocate, to research, to dig and to ultimately EXPOSE, OUT, FIRE, CRIMINALLY PROSECUTE and SUE YOU IN CIVIL COURT if and when you treat our kids with anything less than the absolute respect they deserve. Using the ultimate weapon – the INTERNET – we will continue to expose all you bad special education teachers (and their employers). This on top of the bad karma you are collecting and carrying with you in this life and beyond.

So to Alicia and Kelly, it sucks to be you. You will never work as educators again.

I’ll take barbeque sauce with those nuggets please.

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